Caregiver Care - Autism Research Institute https://autism.org/category/webinar/selfcare/ Advancing Autism Research and Education Wed, 25 Feb 2026 00:04:30 +0000 en-US hourly 1 https://wordpress.org/?v=6.9.4 EMDR Therapy and Autism https://autism.org/emdr-therapy-and-autism/ Tue, 17 Feb 2026 18:21:56 +0000 https://autism.org/?p=25478 Presentation Handout available HERE Amanda Tami, LPC, BCBA, talks about Eye Movement Desensitization and Reprocessing (EMDR) therapy and its use for autistic individuals. She discusses how traumatic memories can get "stuck" in the body and relived when we are exposed to similar stimuli. Tami explains how EMDR works as

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Presentation Handout available HERE

Amanda Tami, LPC, BCBA, talks about Eye Movement Desensitization and Reprocessing (EMDR) therapy and its use for autistic individuals. She discusses how traumatic memories can get “stuck” in the body and relived when we are exposed to similar stimuli. Tami explains how EMDR works as a form of adaptive information processing that allows the brain and body to let go of these traumatic memories and make room for feelings of safety and calm. The speaker emphasizes the need for more research around trauma and autism, underscoring that living in a world that wasn’t built for you is innately traumatic. She outlines barriers to EMDR therapy and details modifications for autism. Tami gives a clinical example of using modified-EMDR treatment for an autistic patient before the Q&A.

More information on EMDR and providers near you – EMDR International Association

About the speaker:

Professional headshot of a person

Amanda Tami, LPC, BCBA, is a Licensed Professional Counselor and Board Certified Behavior Analyst at the Johnson Center for Child Health and Development. She provides behavior analytic services and psychotherapy to neurodivergent individuals and their families. She has experience treating co-occurring conditions such as anxiety, depression, and trauma. Amanda is certified in EMDR therapy and its applications to children. Amanda has provided training and consultation locally, nationally, and internationally to parents and providers on various topics including building emotion regulation, support across the lifespan, sexuality, and trauma-informed ABA. Amanda lives in Austin with her husband and son and loves cats, crosswords, and Below Deck marathons.

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Evidence That Speaks: Prioritizing Proven Communication Supports for Non-Speaking Autistic Children

January 6th, 2026|Back to School, Educational Therapies, Meltdowns, Neurological, Research, Research, School Issues, Sensory, Uncategorized, Webinar|

Connie Kasari, PhD, details what contemporary research reveals about supporting non-speaking or minimally verbal autistic children. She highlights how far the field has come in the past two decades and emphasizes the

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Holidays: Merry, not Meltdown-y. Autism-Friendly Navigation of the Holiday Season. https://autism.org/holidays-and-autism-webinar/ Wed, 10 Dec 2025 23:45:05 +0000 https://autism.org/?p=25377 Holidays can be challenging for autistic individuals. Amanda Tami, LPC, BCBA, will share tips, tricks, and suggestions to help you plan for a merry holiday season. Handouts available HERE More information: Planning for the holiday season - Resource Page Choosing toys for a child with autism - Article Originally published

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Holidays can be challenging for autistic individuals. Amanda Tami, LPC, BCBA, will share tips, tricks, and suggestions to help you plan for a merry holiday season.

Handouts available HERE

More information:

Planning for the holiday season – Resource Page

Choosing toys for a child with autism – Article

Originally published on December 10, 2025

About the speaker:

Professional headshot of a person

Amanda Tami, LPC, BCBA, The Johnson Center for Child Health and Development.

Amanda Tami is a Licensed Professional Counselor and Board Certified Behavior Analyst at the Johnson Center for Child Health and Development. She provides behavior analytic services and psychotherapy to neurodivergent individuals and their families. She has experience treating co-occurring conditions such as anxiety, depression, and trauma. Amanda is certified in EMDR therapy and its applications to children. Amanda has provided training and consultation locally, nationally, and internationally to parents and providers on various topics including building emotion regulation, support across the lifespan, sexuality, and trauma-informed ABA. Amanda lives in Austin with her husband and son and loves cats, crosswords, and Below Deck marathons.

Evidence That Speaks: Prioritizing Proven Communication Supports for Non-Speaking Autistic Children

January 6th, 2026|Back to School, Educational Therapies, Meltdowns, Neurological, Research, Research, School Issues, Sensory, Uncategorized, Webinar|

Connie Kasari, PhD, details what contemporary research reveals about supporting non-speaking or minimally verbal autistic children. She highlights how far the field has come in the past two decades and emphasizes the

The post Holidays: Merry, not Meltdown-y. Autism-Friendly Navigation of the Holiday Season. appeared first on Autism Research Institute.

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Perspective: Adult sibling with profound ASD https://autism.org/perspective-adult-sibling-with-profound-asd/ Tue, 05 Aug 2025 18:09:12 +0000 https://autism.org/?p=19313 Mojdeh Mostafavi, MD, shares her deeply personal journey as a sibling supporting a loved one with profound autism. She describes her experiences from early childhood through adulthood, highlighting the challenges and triumphs that her family and care team have experienced. The speaker shares ten meaningful insights about her family’s journey, highlighting the

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Mojdeh Mostafavi, MD, shares her deeply personal journey as a sibling supporting a loved one with profound autism. She describes her experiences from early childhood through adulthood, highlighting the challenges and triumphs that her family and care team have experienced. The speaker shares ten meaningful insights about her family’s journey, highlighting the importance of communication and advocacy from a very young age. Mostafavi emphasizes the complexities of ever-evolving sibling relationships before the Q&A. 

In this webinar

2:00 – Introduction
4:30 – Early life, diagnosis, and family response
9:00 – The role of siblings and at home care
14:05 – Behavioral challenges during adolescence
17:00 – Adulthood milestones and medical crises
21:30 – Ongoing care and the unknown future
23:00 – Welcome to Holland – a sibling’s perspective
27:00 – Ten reflections from an adult sibling of someone with profound autism
34:00 – Communication challenges and triumphs
43:00 – Family, community, care teams — the importance of support
47:40 – Q&A

Early Life, Diagnosis, and Family Response

Mostafavi’s brother was born in 1995, when she was just two years old. During pregnancy and early infancy, his development seemed uncomplicated. However, at around 18 months, their parents, both medical professionals, noticed a profound developmental regression. He began losing words as he learned new ones, stopped responding to his name, started to avoid eye contact, and exhibited classic stimming behaviors like lining up toys, hand flapping, and finger twisting. The speaker explains that this regression occurred within a five-or six-week period, during which his preschool teacher suggested they get an autism assessment (4:30).  

In 1996, her brother was diagnosed with autism; this was a traumatic experience for her parents, who received a largely negative prognosis. Her parents recall being told that he would likely never speak or live independently and that many strongly suggested institutionalization. Mostafavi reminds viewers that during the mid-1990s, autism prevalence was reported as 1 in 10,000, so there was very little understanding or resources available (7:00). Undeterred, her parents embarked on a journey of self-education, extensively researching interventions and support strategies. They successfully pioneered a home-based program to address their son’s profound needs in an area with few specialized services.

The Sibling’s Role: Integration and Transformation

Growing up, Mostafavi’s life was intrinsically linked to her brother’s care. Their home was a hub for various therapies, including occupational therapy (OT), speech-language pathology (SLP), and ABA. From a young age, she was actively involved in these sessions, often tasked with modeling behaviors or assisting therapists. The speaker emphasizes how this deep involvement made her feel valued and important, which mitigated feelings of being a “glass child” and fostered an understanding and supportive sibling relationship (9:00). It was in her elementary years, around ages six to eight, that she first recognized the unique differences in her family life compared to her peers (12:00)

Adolescence and Behavioral Challenges

Adolescence proved to be an exceptionally challenging period for her brother, particularly due to his limited verbal communication skills and subsequent difficulty expressing his needs and emotions. These challenges often led to intense behavioral outbursts, primarily aggression, including hair pulling, scratching, and biting, usually received by herself or her mother (14:05). Mostafavi underscores that her brother showed remorse after such outbursts, highlighting not only their close bond, but also the lasting distress externalized behaviors can have on everyone involved. The hormonal shifts of puberty further complicated her brother’s ability to self-regulate. The presenter recalls the incredible support they received from her brother’s care team and how they assisted in navigating this challenging moment for their family (15:00). Mostafavi notes her brother’s naturally loving disposition, stating that, even in these hard moments, 95% of the time, it was just awesome. It was that 5% where he struggled with communication that would result in aggressive behaviors.

Adulthood and medical crises

Mostafavi highlights that her experience differs from many because all the support systems they had took place in their home. During early adulthood, her brother reached many key milestones, like going to the movie theater, getting his first hair cut at the barber, and getting his wisdom teeth removed (17:00). The speaker briefly describes the first severe medical crisis her brother had when he was 27, which led to hospitalization and an induced coma. The cause was eventually traced to severe, unexpressed pain, leading to extensive medical evaluation and ultimately a diagnosis and intervention. The presenter comments on how disruptive it was to the entire family to be unable to manage and care for her brother at home. This process forced the family to reassess their resources, their son’s evolving needs, and the family’s well-being. It was a transformative period that instilled a deeper sense of awareness and appreciation for the ongoing challenges of supporting a loved one with profound autism (20:00).

Her brother remains at home with their parents, benefiting from a consistent care team, some of whom have been involved for over a decade. While aggression has subsided, he still experiences self-injurious behaviors, mainly head-hitting, often linked to unexpressed pain. The family is actively working with his medical team to mitigate these symptoms and behaviors. Despite these ongoing challenges, a home-based program with his long-standing care team remains the most effective option for his needs (21:30).

Reflections on the complexities of being a sibling

To articulate the sibling experience, the speaker references Emily Pearl Kingsley’s poem, Welcome to Holland, originally about the parental journey of having a child with special needs. Mostafavi adapts this analogy to the sibling perspective, explaining that a child growing up in “Holland” (a life with a sibling with autism) doesn’t initially understand the concept of “Italy” (a typical life). As they grow, they begin to recognize differences and form their understanding of the world, realizing that “Holland” is the only life they’ve ever known. This perspective highlights that the complexity and evolution of their unique life journey only become fully appreciated in adulthood (23:00)

The speaker provides ten insights/reflections on her experiences as a sibling of someone with profound autism. She emphasizes the multifaceted and ever-evolving nature of the sibling relationship, explaining that their dynamic constantly shifts as both individuals navigate life stages—childhood, adolescence, and adulthood. For Mostafavi, this role often includes aspects of caregiving and, in the future, the role of guardian (27:00). She clarifies that her experience doesn’t align with the “glass child” concept because of her deep integration into her brother’s care, which made her feel valued. However, she acknowledges the profound and complex emotional and psychological impact, including feelings such as hurt, anger, guilt, frustration, love, sadness, and grief. All of these require continuous coping strategies even today (30:00)

A significant aspect of the speaker’s experience is the unique “language” or means of communication she shares with her brother and sister. Living with someone with substantial verbal communication challenges has honed her ability to understand and interpret non-verbal cues (34:00). She touches on the importance of advocacy and empowerment from a young age and the complexities of planning for the future (40:00). Mostafavi asserts the importance of finding “your people” and navigating social life and relationships. The power found in people who support, nourish, and understand the nuances of your life cannot be understated (43:00). The speaker ends by reminding viewers that these are her experiences and that this may look different for everyone. During the Q&A, she discusses therapy for siblings and much more (47:40)

Originally published on January 6th, 2025

The speaker:

Mojdeh Mostafavi, MD is a dual-trained internist and pediatrician currently pursuing a pediatric fellowship in gastroenterology at Mass General Hospital for Children. With a profound personal connection to autism through her brother, Dr. Mostafavi’s dedication to advancing autism care is driven by her commitment to equitable healthcare and her expertise in integrating behavioral theory. Her passion lies in providing care across the lifespan, reflecting her belief in how today’s actions shape future experiences. Her work exemplifies a deep commitment to enhancing access and quality of care for all individuals, particularly those affected by autism.

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  • Diverse Teens Hands Star Concept

Understanding and Supporting Puberty in Autistic Girls and Boys

August 28th, 2025|Gender, Health, Medical Care, News, Parenting, Research, Research, Self Care, Sexuality, Social Skills, Webinar|

Blythe A. Corbett, Ph.D., discusses her lab's research on puberty, adolescence, and mental health in autistic individuals. She emphasizes puberty as a period of significant biological maturation involving several physical, biological, hormonal,

  • Person made of colorful data in the virtual reality

Gender Discomfort and Autism

June 16th, 2023|News|

"I think society has an expectation where you have to be male or female, or you can be somewhere in between [...]. But they don't get that, actually, there are many genders

  • Happy diverse young friends celebrating gay pride festival

LGBTQIA+ and Autism

June 13th, 2022|News, Parenting|

Contemporary research on the intersection of autism, sexuality, and gender identity asserts that autistic individuals are more likely to identify as LGBTQIA+ than the neurotypical population. Similarly, the prevalence of autism is

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Aquatic Therapy Programming for Individuals with Autism https://autism.org/aquatic-therapy-autism/ Tue, 25 Apr 2023 18:42:58 +0000 https://last-drum.flywheelsites.com/?p=15919 Jennifer Knott, CTRS, discusses aquatic therapy programming for autistic individuals. She highlights the potential of such programs for removing barriers to involvement and expanding individual recreation repertoire to build memories and experiences together in a community-based setting. The speaker emphasizes the lifelong nature of aquatic therapy and presents various examples of individualized treatment

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Jennifer Knott, CTRS, discusses aquatic therapy programming for autistic individuals. She highlights the potential of such programs for removing barriers to involvement and expanding individual recreation repertoire to build memories and experiences together in a community-based setting. The speaker emphasizes the lifelong nature of aquatic therapy and presents various examples of individualized treatment techniques and goals. The speaker highlights the absolute need for teaching autistic people water safety skills and details how water’s essential qualities assist therapy techniques and individual skill-building. Knott asserts that we can promote lifelong health, wellness, and leisure development for autistic individuals by harnessing the power of the water and designing inclusive accessible programs. 

Take the knowledge quiz for this presentation HERE
Handouts are online at: Aquatic Therapy for Individuals with Autism

In this webinar: 

1:30 – About Jenn Knott
4:08 – Recreation therapy
6:15 – Aquatic therapy
8:25 – Properties of water
10:30 – Water safety skills
13:30 – Need for physical activity across the lifespan
15:55 – Barriers to community aquatic programming
18:40 – Aquatic therapy approach
20:20 – Aquatic therapy assessments
22:00 – Skills addressed in aquatic therapy
28:30 – Sensory stimulation in the water
33:20 – Case study: Donovan
38:00 – Swim skills are transferable
40:30 – Teaching swim safety skills
43:02 – Alleviating fear and anxiety
47:45 – Q & A

Introduction

Jennifer Knott introduces herself and explains how her intense passion for aquatic therapy was born. Her journey in aquatic therapy began while she was in college and volunteered at Hattie Laram, a group home for individuals with severe to profound disabilities. There she witnessed the transformative power of water on individuals’ physical functioning, behavior, and mood (1:30). Knott notes that this experience solidified her decision to dedicate her life’s work to eliminating barriers and providing meaningful recreation programs for individuals with special needs. She started Rec2Connect to provide communities with more accessibility to these life-changing therapies across an individual’s life (3:00)

Recreation and aquatic therapy

Recreation therapy, although not widely known, is a lifelong therapy that uses recreational approaches to address the specific needs of individuals with chronic disabilities, syndromes, or diseases (4:08). Knott explains that treatment methods are highly individualized and can include any recreation (not just aquatic). Methods retain similar goals to physical, occupational, and speech therapy techniques. Skills taught in these programs aim to be transferable across opportunities and daily life. 

The speaker defines aquatic therapy as a form of recreation therapy that uses “water and specifically designed activity by qualified personnel to aid in the restoration, extension, maintenance, and quality of function for persons with acute, transient, or chronic disabilities, syndromes, or diseases” (6:40). Aquatic therapy includes goals that address skills which can be transferred to land and can be administered by a variety of professionals (7:35). Knott details properties of water like buoyancy, resistance, and hydrostatic pressure, which provide sensory-rich environments and help with focus and centering (8:30). For example, the hydrostatic pressure of water evenly distributed across the body offers a comforting “hug” and balanced sensory inputs. 

Aquatic therapy and autism

The speaker notes that many autistic individuals are often drawn to the water but lack the necessary safety awareness and skill sets. She discusses research suggesting a need for teaching swimming skills at a young age, highlighting that autistic children are 160 times more likely to die from drowning compared to the general pediatric population (10:30). Knott therefore asserts that swimming should be taught as an imperative survival skill before any behavioral, speech, or occupational therapies. She provides examples of safety measures such as specialized bracelets and watches and locks on doors and pools to ensure the well-being of autistic individuals in the water (12:35). Knott emphasizes the need for physical activity across the lifetime as a driver for mental and physical health (13:30). The presenter notes significant barriers to community aquatic programming and their effectiveness in skill-building for individuals with autism and other disabilities (15:50)

Many autistic individuals exhibit hyperactivity, sensory-seeking behaviors, aversion to water, motor deficits, hypertonia, and balance issues. The speaker explains that participating in aquatic therapy can address these challenges and provide opportunities for lifelong leisure and skill development (19:00). She summarizes the aquatic therapy approach as individualized (based on patient assessments), goal-driven, and focused on lifelong skills, like motor movement. Personalized sessions are based on an individual’s interests and are often conducted weekly to track progress and guide future therapy sessions (21:15).

Skills addressed in aquatic therapy

Knott reiterates that skills addressed in aquatic therapy sessions extend beyond swimming and aim to be transferable. These can include gait, core strength, following directions, balance, gross motor skills, sensory regulation, and much more (22:00). She presents different examples of activities that address core strengthening, like pushing objects underwater or using fins for kicking (25:00). Motor skills and strength can be addressed with weighted medicine balls, squeezing sponges, and pool games that incorporate physical actions and hand-eye coordination. The speaker describes techniques used to build capacity for using one’s arms and legs simultaneously in water compared to on land (27:00). Knott reiterates the importance of incorporating sensory activities into therapy techniques, as well as allowing sensory breaks (32:34). She outlines a case study where therapeutic goals addressed sensory needs, core-strength, and coordination, as well as swim safety skills such as grasping the pool wall, swimming to the pool wall, and holding breath underwater (33:20). The presenter notes that many individuals experience water aversion and discusses techniques for building trust and alleviating fear and anxiety surrounding water (43:00)

Knott reiterates the impact of aquatic therapy on lifelong health and wellness such as increased physical activity, decreased likelihood of drowning, increased strength, and opportunities for social activities (44:40). She provides thanks and references before the Q & A session where she covers accessibility to aquatic therapy programs, potentially toxic chemicals in pools, autism-friendly swimming environments, and more (47:45)

The speaker:

Jennifer Knott, CTRS, works to assist individuals with special needs in a community-based setting. She is a graduate of Kent State University with a Bachelors in Leisure Studies with Concentration in Recreation Therapy and a minor in Psychology and a member and Presenter at the Aquatic Therapy and Rehab Institute. “In working with children, adults, and families with special needs, we recognize the the many barriers to recreation involvement. We strive to eliminate as many barriers as possible by designing inclusive, goal-driven, individualized, and meaningful recreation programs. We believe that recreation activities can assist people with special needs and families in expanding their recreation repertoire, memories, and experiences together.” She currently serves as the Executive Director of Rec2Connct located in Wadsworth, Ohio.

Take the knowledge quiz

Can’t see the quiz below? Take it online HERE

Evidence That Speaks: Prioritizing Proven Communication Supports for Non-Speaking Autistic Children

January 6th, 2026|Back to School, Educational Therapies, Meltdowns, Neurological, Research, Research, School Issues, Sensory, Uncategorized, Webinar|

Connie Kasari, PhD, details what contemporary research reveals about supporting non-speaking or minimally verbal autistic children. She highlights how far the field has come in the past two decades and emphasizes the

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Parents and Caregivers: The Importance of Self-Care https://autism.org/self-care/ Wed, 18 Jan 2023 20:18:48 +0000 https://last-drum.flywheelsites.com/?p=15553  “If you are an exhausted or overwhelmed caregiver, this presentation is for you.” Amanda Tami, LPC, BCBA, discusses the importance of self-care for adult caregivers supporting people with special needs, including autism. She provides context for mental health in the US and highlights the importance of self-care in the modern world. The speaker

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 “If you are an exhausted or overwhelmed caregiver, this presentation is for you.”

Amanda Tami, LPC, BCBA, discusses the importance of self-care for adult caregivers supporting people with special needs, including autism. She provides context for mental health in the US and highlights the importance of self-care in the modern world. The speaker outlines factors that affect mental health, discusses burnout compared to depression, and describes issues with the way society views and idealizes self-care. Tami reframes self-care using five key aspects to create more accessible and realistic expectations for adult caregivers. She emphasizes short personalized self-care routines that can be done alongside other responsibilities and notes the trial and error of discovering what works. Throughout the presentation, Tami highlights community support and socialization. She provides references and resources before the Q&A.

Take the knowledge quiz for this presentation HERE

In this webinar: 

0:40 – Introduction and agenda
2:58 – Mental health risk factors for parents
5:50 – Relationship challenges and family needs
8:16 – Burnout and depression
12:20 – Improvement as a major difference
13:11 – COVID-19 Pandemic and mental health
14:20 – Self-care: expectation vs reality
18:00-  Self-care for a bad day
19:25 – Reframing self-care
21:19 – Setting boundaries and priorities
26:50 – Recognizing the non-negotiables
28:50 – Self-care via Maslow’s Hierarchy of Needs
31:54 – Find a purpose
33:10 – Filling your cup
36:10 – Self-care activities
40:12 – Daily cup flowchart
42:09 – Community care vs self-care
45:45 – Three important questions
48:08 – References and resources for parents
48:30 – Q&A

Self-care for parents and caregivers

Tami introduces the presentation agenda (0:40) and summarizes the current face of mental health in the US (1:30). Since the pandemic, she explains, the number of people seeking assistance for mental health has significantly increased. However, up to 66% of those individuals never attain care (2:33). She emphasizes the importance of self-care in light of such data and lists factors that can impact mental health (especially for caregivers and parents of individuals with disabilities): stressors related to diagnosis and treatment, relationships difficulties, family needs, work, and burnout (2:58). Tami highlights that parents of children with autism are at a higher risk for acute and chronic stress than parents of children with other disabilities and neurotypical children (4:20)

Burnout, depression, and COVID-19

The speaker gives real-world examples and descriptions of relationship challenges faced by caregivers and parents of autistic individuals (5:50). She underscores how overwhelming family, household, and employment needs are (7:26) and that they often lead to burnout, especially for parents of kids with disabilities (8:16). Burnout, Tami explains, is an exhaustion syndrome caused by a gap between resources and demands and can apply to parenting, caretaking, and any other form of work (8:41). The presenter compares burnout to depression (9:52), noting differences in terminology and qualifications and similarities in physical and physiological symptoms (11:30). Tami discusses the impact of the COVID-19 pandemic on mental health, citing a study that found 43% of caregivers reported an increase in pre-existing mental health conditions post-pandemic (13:11)

Self-care misconceptions

Even with the enormous responsibility and long to-do lists of caregivers, many single parents or solo caregivers must navigate independently (14:20). The speaker describes misconceptions in our expectations of what self-care looks like (15:56) and explains how idealized self-care strategies (i.e., long walks in nature, vacation, cleaning the whole house) are often not realistic (15:56). Tami emphasizes benefits of doing less (18:40) and asks viewers to consider when/why they learned that their self-care needs are lesser than everyone else’s (20:20)

Five key aspects of self-care

The presenter reframes self-care (20:26) to include five key aspects: 

1. Set priorities

From a young age, we learn (especially women) that making yourself a priority is selfish and wrong. Tami asserts that we must question this narrative and “add ourselves to the list of priorities.” 

Tip: You can start by telling yourself that practicing self-care is helping others because you will be able to care for them better if you are healthy (21:19)

2. Set boundaries

A boundary is a “limit to what you will do and what you are willing to take on as your responsibility.” Tami states that it’s best to discuss boundaries before they need to be enforced, as it allows for more realistic expectations and more meaningful interactions. 

Tip: When someone asks you to do something, finish what you were doing first (23:15)

3. Recognize the non-negotiables

Maslow’s Hierarchy of Needs places physiological (biological) needs at the base of the pyramid, followed by safety needs, love and belonging, esteem, and self-actualization (26:50). If one’s biological (baseline) needs are not fulfilled, one can meet no higher need. Tami encourages viewers to reframe their self-care in this view, starting from the bottom up (28:50)

Ask yourself: How much water am I drinking? Am I eating and sleeping enough? How much news and social media do I take in? How may that be affecting me? Do I need to reach out to someone? (30:30)

4. Find a purpose 

Take time to rediscover and relearn what you like, or pick up a new hobby. The speaker suggests anything from leisure activity to advocacy but warns that over-investing in macro causes can lead to burnout.

Ask yourself: I am a parent/caretaker… and? What do I want to be to the world (31:54)

5. Fill your cup

Tami rethinks the “fill-your-cup metaphor” (33:10), asserting that the goal is to keep the cup from running empty. Using practical, simple, and repeatable self-care activities (35:29) throughout the day helps to consistently “refill” one’s cup a bit at a time (40:12). She lists potential activities, including an extra long shower, alone time in the car, small movements, intentionally enjoying what you buy for yourself, using your senses, or anything that changes your focus or energy. The speaker underscores that it’s okay to do what you need to do to get time for yourself – this includes allowing kids screen time when you need to unplug (36:10)

Ask yourself: What energizes me? What depletes my energy?

Tip: Make lists of needs versus wants

Conclusions

The presenter touches on community care as a hopeful paradigm for the future, as it is clear that caregiving, like life, is not meant to be done alone (42:09). She underscores the power behind the principle of universality and urges viewers to attend events where people in similar situations will be (43:00). Tami leaves viewers with three critical questions to ask themselves: What brings me joy? What is the unmet need? What prevents me from getting that need met (45:45)? She provides references and resources for parents before the Q&A, addressing questions about finding communities, delegating roles/responsibilities, how to set boundaries amid blowback, and much more (48:30). 

The speaker:

Amanda Tami is a Board Certified Behavior Analyst and a Licensed Professional Counselor at The Johnson Center for Child Health & Development. She provides behavior analytic services and psychotherapy to children and adults on the autism spectrum and their families. She also has experience treating co-occurring conditions such as anxiety, depression, ADHD, and trauma. Amanda has specialized training in EMDR therapy and its applications to children. In addition to individual therapy, Amanda provides training and consultation to parents and providers on various topics including building emotion regulation, support across the lifespan for individuals with ASD, and trauma-informed ABA.

Take the knowledge quiz

Can’t see the quiz below? Take it online HERE

  • Hand of doctor reassuring her female patient. Medicine and health care concept

How Can Insights from Autistic Doctors, Including Autistic Psychiatrists, Contribute to Improving Understanding of Autism and Outcomes for Autistic People?

September 2nd, 2025|Adults on the Spectrum, Health, Medical Care, Neurological, Research, Research, WAO, Webinar|

Handouts are available HERE You can take the knowledge quiz HERE https://autisticdoctorsinternational.com/ Autistic doctors have unique insights to offer on autistic experience, autistic wellbeing and healthcare.

  • Diverse Teens Hands Star Concept

Understanding and Supporting Puberty in Autistic Girls and Boys

August 28th, 2025|Gender, Health, Medical Care, News, Parenting, Research, Research, Self Care, Sexuality, Social Skills, Webinar|

Blythe A. Corbett, Ph.D., discusses her lab's research on puberty, adolescence, and mental health in autistic individuals. She emphasizes puberty as a period of significant biological maturation involving several physical, biological, hormonal,

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Externalizing behavior among children with neurodevelopmental disabilities

June 3rd, 2025|Anxiety, Anxiety, Executive Function, Health, Medical Care, Meltdowns, Neurological, Parenting, Research, Research, Self Care, Self Injury, Self-Injury, Sensory, Sleep, Social Skills, Webinar|

Summer Bottini, PhD, discusses externalizing behavior among children with neurodevelopmental disabilities and a behavioral framework for how this behavior develops and persists over time. She

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Telehealth Strategies for Early Intervention https://autism.org/telehealth-strategies-for-early-intervention/ Tue, 17 Nov 2020 16:40:51 +0000 https://last-drum.flywheelsites.com/?p=11869 Are you an early intervention provider who is new to telehealth coaching? Or are you familiar with parent coaching and/or telehealth delivery but looking for strategies to expand your coaching skills and session style? Some coaching in early autism intervention can take a "do it like this," expert-driven style

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Are you an early intervention provider who is new to telehealth coaching? Or are you familiar with parent coaching and/or telehealth delivery but looking for strategies to expand your coaching skills and session style? Some coaching in early autism intervention can take a “do it like this,” expert-driven style that unintentionally leaves parents always looking to the provider for answers/solutions. Learn about how the telehealth Early Start Denver Model instead looks to parents and caregivers as partners in deciding children’s learning goals and how to best support them with the coaching topics and ideas we share.

Handouts are online HERE

About the speaker:

Laurie Vismara, PhD is a therapist and researcher in early autism intervention. She has spent the last 15 years contributing to the science and program development of the Early Start Denver Model (ESDM), named by Time magazine as one of the top 10 medical breakthroughs for early autism intervention. Over a dozen studies have found the ESDM to be effective and with gains maintained for infants and toddlers with or at risk of autism who have a wide range of learning styles and abilities. Dr. Vismara uses telehealth platforms and travels throughout the United States, Canada, and other countries to help publicly funded intervention programs and universities develop the ESDM in their communities.

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Can’t see the quiz below? Take it online HERE

Evidence That Speaks: Prioritizing Proven Communication Supports for Non-Speaking Autistic Children

January 6th, 2026|Back to School, Educational Therapies, Meltdowns, Neurological, Research, Research, School Issues, Sensory, Uncategorized, Webinar|

Connie Kasari, PhD, details what contemporary research reveals about supporting non-speaking or minimally verbal autistic children. She highlights how far the field has come in the past two decades and emphasizes the

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Self-Regulation Strategies for Self-Injury

March 25th, 2025|Adults on the Spectrum, Anxiety, Assessment, depression, Meltdowns, News, Self Care, Self Injury, Self-Injury, Webinar|

Emily Ferguson, Ph.D., discusses self-regulation strategies for self-injurious behaviors (SIB). She outlines recent research on the frequency and distribution of different SIBs across a large sample, underscoring the importance of assessing individual behavior

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Autism and Gastrointestinal Comorbidities – Research Updates

March 20th, 2025|Anxiety, Gastrointestinal, Health, Medical Care, Meltdowns, News, Nutrition, Research, Self Care, Self Injury, Self-Injury, Sensory, Webinar|

Mojdeh Mostafavi, MD, describes gastrointestinal conditions commonly seen in individuals with autism, including gastroesophageal reflux disease (GERD), inflammatory bowel disease (IBD), Eosinophilic GI disease (EGID), avoidant/restrictive food intake disorder (ARFID), disorders of

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*Effects of Medical Experiences on Child Development, Part 2 https://autism.org/effects-of-medical-experiences-on-child-development-part-2/ Fri, 12 Apr 2019 23:11:57 +0000 https://last-drum.flywheelsites.com/?p=6303 Meeting the Needs of School-Age & Adolescent Children Presented by Jeanna Hill, MS, CCLS Published: 04/12/2018 Jeanna Hill (formerly Martinez) received her B.A. in Psychology with a minor in Early Childhood Intervention from Texas State University. She then went on to obtain her Master’s degree in Family and Child Studies on

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Meeting the Needs of School-Age & Adolescent Children
Presented by Jeanna Hill, MS, CCLS

Published: 04/12/2018

Jeanna Hill (formerly Martinez) received her B.A. in Psychology with a minor in Early Childhood Intervention from Texas State University. She then went on to obtain her Master’s degree in Family and Child Studies on the Child Life Track. She completed a Child Life practicum and Child Life internship at Christus Santa Rosa Children’s Hospital in San Antonio, TX. While there, she was placed in the hospital’s outpatient clinic, as well as completed her internship rotations in the GI unit and Emergency Department. Jeanna is currently a Certified Child Life Specialist and is trained in child development, special education, early intervention, family systems and stress, and developmental disabilities. Jeanna has experience working with children and families in various settings including residential facilities, educational facilities, and children’s hospitals, providing emotional support to families during stressful life experiences.

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*Caring for the Caregiver: Pyschotherapy for Families of Children with Special Needs https://autism.org/counseling-considerations-for-parents-and-siblings/ Mon, 26 Mar 2018 23:36:44 +0000 https://last-drum.flywheelsites.com/?p=3188 Presented by Amanda Tami, LPC, BCBA Parents and siblings of people with special needs may find themselves facing unique challenges. From the everyday fight to advocate for their loved one's best interests to the fear of what the future might bring, special needs families often find themselves in stressful situations. Living in

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Presented by Amanda Tami, LPC, BCBA

Parents and siblings of people with special needs may find themselves facing unique challenges. From the everyday fight to advocate for their loved one’s best interests to the fear of what the future might bring, special needs families often find themselves in stressful situations. Living in a constant state of stress is hard on the body and mind, but therapy can help.
Join us as we discuss the areas in which psychotherapy might benefit family members of people with ASD and things to consider when looking for a therapist.

If you would like a Certificate of Attendance, after viewing the webinar visit
https://www.classmarker.com/online-test/start/?quiz=7cq5aa19eb583c71
After successfully completing a short quiz, your certificate will be available to download.

Published: 03/26/2018

Amanda holds a master’s degree in counseling psychology and has completed a recertification program in Applied Behavior Analysis (ABA). In addition to being a Board Certified Behavior Analyst, Amanda is a Licensed Professional Counselor. She has experience working with both children and adults on the autism spectrum and other pervasive developmental disorders as both an ABA therapist and a counselor. Amanda is pleased to be able to share her experience and knowledge in the Johnson Center’s Behavioral Services program, giving her the opportunity to pursue her passion in helping children with special needs. She is as excited to help the children in the program and their families as she is about all that she learns from each one of them. Amanda comes from a unique position in her education and background to understand the challenges that clients and their families face – developmentally, behaviorally, emotionally, and systematically – to see the patterns and teach the skills needed to improve quality and functioning in all aspects of life.

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*Patient and Family Centered Care: What You Need to Know https://autism.org/patient-and-family-centered-care-what-you-need-to-know/ Thu, 17 Nov 2016 18:16:08 +0000 https://last-drum.flywheelsites.com/?p=3419 Presented by Jeanna Hill, CCLS The Johnson Center for Child Health & Development If you would like a Certificate of Attendance, after viewing the webinar you may go to: tinyurl.com/patientandfamily.com After you successfully complete the short quiz you will be able to download your certificate. Published: 11/17/2016 Presented by Jeanna Hill, MS,

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Presented by Jeanna Hill, CCLS
The Johnson Center for Child Health & Development

If you would like a Certificate of Attendance, after viewing the webinar you may go to: tinyurl.com/patientandfamily.com
After you successfully complete the short quiz you will be able to download your certificate.

Published: 11/17/2016

Presented by Jeanna Hill, MS, CCLS
Family Care Coordinator at The Johnson Center for Child Health & Development

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Caring for the Caregiver https://autism.org/caring-for-the-caregiver/ Wed, 13 Jan 2016 18:54:23 +0000 https://last-drum.flywheelsites.com/?p=2952 Free certificates of participation are available upon completion of brief knowledge quiz: https://www.classmarker.com/online-test/start/?quiz=bvk5694324ee56d7 Listen to nutritionist Kelly Barnhill discuss the importance of self-care for adult caregivers, focusing on reasonable dietary and lifestyle choices and appropriate basic nutritional supplementation. Ms. Barnhill will touch on all of the current dietary trends, what to believe,

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Free certificates of participation are available upon completion of brief knowledge quiz: https://www.classmarker.com/online-test/start/?quiz=bvk5694324ee56d7

Listen to nutritionist Kelly Barnhill discuss the importance of self-care for adult caregivers, focusing on reasonable dietary and lifestyle choices and appropriate basic nutritional supplementation. Ms. Barnhill will touch on all of the current dietary trends, what to believe, what is based in evidence and research, and how to make choices for yourself and your family amid all the noise. This talk will review the key components to success with the above strategies by focusing on two major components that wear us down – poor sleep habits and poor nutrition. It will review sleep hygiene and natural sleep support options, healthy dietary intake for all, and nutritional supplements to consider for acute support when needed.

Published: 01/13/2016

Kelly Barnhill, MBA, CN, CCN serves as the Nutrition Coordinator for ARI. She is also Director of the Nutrition Clinic and the Clinical Care Coordinator at the Johnson Center for Child Health and Development. In her private practice, Kelly focuses on building appropriate dietary and supplementation protocols for children with developmental delays and disorders, siblings of affected children, and children with significant gastrointestinal disease. Kelly also has expertise in prenatal and infant nutrition. She practices in Austin, Texas.

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